|Posted by Simone on June 5, 2013 at 4:30 PM||comments (0)|
Walkin' Talkin' Lupus (WTL) is a new weekly walking group created by the Lupus Star Foundation to bring together lupus survivors in a healthy, adventurous way. The group will participate in various activities, all while building the strong support network that lupus patients need. The main goal of Walkin' Talkin' Lupus is to allow lupus survivors to connect with one another, share lupus information, as well as personal issues, stories and advice; in a fun, healthy way. WTL will attend local events and participate in activities such as visiting museums, dining together, walking, taking boat rides and the occasional round of mini golf. A traditional support group where you sit in a room and have discussions is great, but our group is the next level of therapy. Enjoying and connecting with your support network in a fun and exciting way is good for the patients' physical, mental and emotional well-being. The group is open to people with other chronic illnesses and supporters as well. Our main activity will be walking the downtown Detroit area. This promotes good health and allows lupus patients to connect in a unique way.
Lupus warriors and supporters take a leisurely walk together for exercise and good health, but more importantly to connect, learn from and support one another. Just think of it as a support group, walking club and girl's day out all in one!! Men are welcome too! Bring your families along, a good walk is great for everybody's health. We will stroll the river walk beginning at Milliken State Park (Atwater St and Rivard), we will meet near the carousel. Please let us know if you plan to attend by email, Twitter or Facebook.
Information about the WTL events will always be posted in the LSF events calendar, and can also be found on the site homepage. The first Walk is scheduled for Sunday June 30th at 6pm. More details can be found on the events calendar. Please tweet @lupusstar or email [email protected] any questions or concerns. We encourage all Lupus patients in the Metro Detroit Area to join Walkin' Talkin' Lupus, no matter how serious your illness is!! We need you, as much as you need us!!
WEAR PURPLE OR ORANGE!!
|Posted by Simone on May 28, 2011 at 9:07 PM||comments (0)|
We need dedicated lupus supporters to help us out with our lupus awareness booth at various summer festivals. The first festival will be on Saturday June 4th in Ann Arbor, MI. The second is July 1-4th. Please let us know if you would like to help out. Your support and assistance will be greatly appreciated. Please email [email protected] if you would like to help us!!
Remember that our peer support group meeting is scheduled for June 5th in Ypsilanti!! All chronic illness sufferers, supporters, friends and family are invited. Refreshments and light snacks will be served. Please join us to support each other and share valuable experiences and information.
|Posted by Simone on May 19, 2011 at 8:26 PM||comments (0)|
|Posted by Simone on May 11, 2011 at 9:45 PM||comments (0)|
ScienceDaily (May 9, 2011) — Five million people worldwide suffer from the chronic rheumatic disease SLE, systemic lupus erythematosus. Together with rheumatologists, researchers at Lund University in Sweden are on the way to developing a new test that could resolve a number of question marks surrounding the disease and in the long run improve the lives of SLE patients.
Their research is published in the next issue of the journal Molecular and Cellular Proteomics.
"At present, it can take up to a year before a patient is diagnosed with SLE. This is because the symptoms are diffuse and are often mistaken for other diseases. However, with this blood-based test, it is possible to determine quickly whether someone has the disease or not," says Christer Wingren, associate professor in Immunotechnology at CREATE Health, Lund University.
The test can also determine how far the disease has progressed. There are three different variants of SLE, and all require different treatment. With current methods, it is often difficult to find out which variant a patient has, which makes it difficult for doctors to prescribe the right medication. A third advantage of the new technique is that it also makes it possible to predict when the disease will become active.
"Characteristic of SLE is that the disease goes in waves, or flares. Without warning, the disease can flare up and put the patient out of action for a long time. With our test, we hope to be able to predict when an episode is about to happen and in this way prevent it using the right medication," explains Christer Wingren.
If all goes well, hospitals could start using the technique in two to three years.
The test itself comprises a small chip, smaller than a little fingernail, on which the researchers create a grid pattern, known as an array, using specially selected antibodies. The antibodies serve as 'capture molecules'; by placing a drop of blood on the chip, the antibodies bind the proteins, or biomarkers, in the body. In this way, a unique 'fingerprint' is produced for each patient, which reflects the disease.
"In our article, we show which pattern of biomarkers (the 'fingerprint') to look for. From a technical point of view, we get a large number of data signals that say whether the marker is present and in what quantity. These measurements are then entered into a computer, which can present them to the doctors in a way that is easy to understand. It is this fingerprint which doctors could use in the future in clinical practice," explains Christer Wingren, who has spent most of the past decade developing the technique, and the past two years adapting it for SLE in particular.
According to Christer Wingren, a number of researchers around the world have attempted to develop something similar, but without success. The Lund researchers' success in the task is partly due to them having found a way to make the antibodies stable and thus more functional. The method has also become highly sensitive.
In order for the research to benefit patients, a number of key biomarker signatures, which form the basis for the test, have been patented. The findings have also been transferred to a newly started company, Immunovia, which was founded by Christer Wingren and three of his colleagues at the Department of Immunotechnology.
The research has its origins in the cancer research that Christer Wingren and a number of other researchers at the translational cancer centre CREATE Health work on. Together with Carl Borrebaeck, Dr Wingren uses an equivalent technological platform that can detect and diagnose different types of cancer. They have very promising data for predicting breast cancer recurrence and diagnosing pancreatic cancer.
The above story is reprinted (with editorial adaptations by ScienceDaily staff) from materials provided by Lund University, via AlphaGalileo.
|Posted by Simone on May 10, 2011 at 11:19 AM||comments (0)|
World Lupus Day began with a Proclamation 7 years ago by an international steering committee representing lupus organizations from 13 different nations when they met in Eaton, United Kingdom to organize the first observance of World Lupus Day. The Proclamation is a call to action for governments around the world to increase their financial support for lupus research, awareness and patient services.
The Proclamation reflects the emerging issues that people with lupus around the world must face every day. The Proclamation serves to give a single voice to all individuals affected by this devastating and debilitating chronic disease.
|Posted by Simone on April 16, 2011 at 2:00 PM||comments (0)|
Lupus Star Foundation is proud to announce that we have a volunteer opportunity this spring and summer. We will assist CCC Because We Care Foundation with their volunteer program with the Detroit Tigers. We will work the concessions during the 2011 Tigers season and earn money for Lupus Star Foundation. We need as many people to volunteer as possible. The more games we work and the more people we have at the games, the more money we will have donated to us. LSF really needs your help!!!
There are 30 games that we can volunteer for, but you can work as many or as few as you would like. Regardless if you plan to work 1 or 25 games, you are required to attend training. You must be 18 years and older. May training sessions are on Monday, May 9th from 6-9pm, and Thursday, May 19th from 6-9pm. You can attend either day. We began working games on Friday, April 22, 2011 and we will work through Wednesday, September 28, 2011. If you are interested please let me know as soon as possible. Also, please pass this on to your family, friends and supporters. Email, call, text, post it to your Facebook and Twitter account, whatever you have to do to get volunteers. Anyone can help out!!
If you would like to get involved, but this is not the program for you, please contact us. If you would like to donate to the foundation please do so oon our donations page.
Email: [email protected] or call us at (734) 274-4632
|Posted by Simone on April 16, 2011 at 1:47 PM||comments (0)|
Our online donation system is now up and running. Please take the time to donate to our cause. We cannot do anything without your help. We are currently working on an awareness campaign, beginning a support group, and organizing several events. Without your donations we will not be able to accomplish our goals.
Please forward your friends, family and other lupus supporters to our website and donations page. Every cent counts. We are looking forward to organizing great services and events to you all.
To donate please visit our donations page. Credit and debit cards, and bank and Paypal accounts are all accepted. You can donate even if you do not have a Paypal account.
Let's continue to spread Hope & Love 4 Lupus!!
|Posted by Simone on July 25, 2010 at 8:38 PM||comments (0)|
We have decided to publish a quarterly newsletter. There will be information regarding lupus and LSF included in the newsletter. Topics that are discussed on our site will be highlighted in the newsletter as well. We would like to include a section for lupus supporters and survivors. If you have a story or a well wish for someone that you would like to share in the newsletter please contact us. Also, if you would like a copy of the newsletter please email your mailing address to us. We would also like to include topics that are of interest to you, so please do not hesitate to tell us what you would like to see in the upcoming newsletter. Remember its all for you!
|Posted by Simone on July 7, 2010 at 7:37 PM||comments (0)|
Our first event at the Lakeshore Festival was very successful. We had a chance to meet lupus patients in the area and spread lupus awareness to the fair goers. We were also able to do some fundraising as well. The weather was good and everyone had a great time. I am hoping to get more people to join our site, so that we can build a strong network of lupus patients and supporters.
I am currently putting the pieces together to participate in the Community Health Fair in Detroit. I think we will have our 2nd event on July 24th guys. This is exciting! Remember to post in the forums. The more info we have there, the more people will visit our site and support our cause!!
|Posted by Simone on June 17, 2010 at 11:39 PM||comments (3)|